Two days ago, we were very concerned about some of the worst things that could be associated with the omphalocele. Since then, he has had a normal blood sugar, completely normal labs, stable and normal vitals, surgical repair of the herniation with removal of the Meckel's diverticulum, an exceedingly alert awareness of his surroundings, and cautious but very optimistic reports from all the doctors except for the one we have been waiting to see since we got there...
We finally met with the pediatric geneticist today, a pediatrician who specializes in diagnosing and managing genetic and congenital conditions such as the trisomies and Beckwith Wiedemann. Dr. Morgan and his sidekick fellow Dr. Kozel told us today that Harrison may very well have Beckwith Wiedemann Syndrome (BWS) and proceeded to point out some physical findings that suggest the diagnosis...stuff I mentioned earlier (large tongue, omphalocele). However, he added one more piece of excellent news: he thinks it is very unlikely that there is anything else wrong with our little boy. He listed the concerns I already mentioned in yesterday's post about BWS (tumors, etc), and added that there is no risk of Harrison having developmental delays above and beyond that of any other baby born today. That was a huge relief as you can imagine! Harrison will get some tests and ultrasounds every three months, but he is very very strongly expected to have a normal lifespan with normal functions and normal development...if it weren't for his completely abnormal father, there wouldn't be a single thing to worry about. This is an exciting answer to our tear-filled prayers for months.
Grandma Ellen holding Harrison this morning under his teddy bear's watchful eye...
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